MS-CCSVI-UK Action Group Website

The aims of MS-CCSVI-UK are to raise UK awareness of Chronic Cerebro-Spinal Venous Insufficiency (CCSVI) and its potential influence on Multiple Sclerosis (MS) and to support the commissioning of clinical research in the UK, to prove or disprove Prof. Zamboni's hypothesis.

Making use of the power of the internet to contact people and mobilising them to lend their voice to this cause we hope to bring CCSVI to the attention of the government and politicians, the medical profession and MS support systems, the press and the media.  We do not know what the results of the research will show, but until trials take place people impacted by MS will feel as though they are being ignored.

Over the years there have been many theories proposed that purport to explain the various mechanisms within the MS disease process, some of which are perhaps more credible than others.  A large number of MS sufferers feel, maybe even know that the CCSVI hypothesis is a significant discovery that represents a considerable leap forward in our understanding of this debilitating condition.  Simply put, CCSVI in MS makes a great deal of sense and it resonates very strongly with a sizeable proportion of those affected.  This is perhaps more than can be said of some of the other more established theories.  For instance, whilst few can argue against MS as having an auto-immune component at its core, the theory of auto-immunity on its own falls woefully short of being the panacea that explains everything that occurs within MS.

To date, the MS jigsaw has certainly shown itself to be a formidable challenge.  But in CCSVI, Prof Paulo Zamboni has undoubtedly found a vital piece.  The potential impact that his exciting discovery will have on our understanding of MS and the way it will be diagnosed and treated, will not be fully known until more research has been concluded.  However, galvanising support for research into areas that don’t directly align in some way with the blinkered belief that MS is strictly a Neurological condition, is easier said than done.  Therefore, one of our core objectives is to see further research conducted into CCSVI.

Regardless of the fact that the NHS in the UK has independent systems for Scotland, England, Wales and Northern Ireland, and regardless of the fact that certain MS charities are based around regional and local branches, we at MS-CCSVI-UK think differently.  We believe that our collective voices are heard more clearly when we all speak together as one voice.  Therefore, MS-CCSVI-UK represents people impacted by MS from throughout the whole United Kingdom.  We invite everyone in the UK to speak along with us to enable those voices to be heard.  Information posted both on this website and by our Facebook group is relevant to everyone.