Downloadable Templates you may find useful from MS-CCSVI-UK




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MS CCSVI DISCRIMINATION - MEDICAL ETHICS LETTER TO PROF JOHN HARRIS



 07 April 2011
Download another thought-provoking PDF document written by group member Alison - OPEN LETTER TO PROFESSOR JOHN HARRIS, Lord Alliance of Bioethics, University of Manchester, UK.



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A letter to Emily Thornberry




 07 April 2011
A letter written by Michèle Findlay of MS-CCSVI-UK to Emily Thornberry, Labour MP for Islington South & Finsbury and Shadow Health & Social Care Minister. This may serve as an example to other letter writers.



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Cindy Fulton scratched her knee and got rid of her MS symptoms




 07 April 2011
You might find this a useful reference document. Cindy Fulton tells the story of how she woke up from a coma to find her MS symptoms had gone. She had received a venoplasty for a reason other than CCSVI.  



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Sample letter to GP




 
Download a Word template to help you write to your GP in order to introduce your discussion about CCSVI.



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MS-CCSVI-UK - The Way Forward



 02 Dec 2010
Download an updated information sheet from MS-CCSVI-UK, updated with all the latest findings and theories, as presented during the international conference in Glasgow, CCSVI - The Way Forward.



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CCSVI - "Born to Run" in Poland,
Only Wheelchairs and Steroids in the UK


Download another interesting PDF document written by group member Alison, from her own personal perspective.  These are the views of a pwMS and CCSVI, comparing and contrasting the lack of treatment options in the UK for her proven vascular condition, with the comprehensive investigation and treatment she received in Poland. In Poland, despite the comorbidity of her positive MS diagnosis, she received treatment for her vascular condition without any of the discrimination she encountered in the UK.
 



CCSVI - The Way Forward, Conference Flyer
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CCSVI - The Way Forward

Download a flyer about the conference
CCSVI - The Way Forward,
presented by the Essential Health Clinic in collaboration with MS-CCSVI-UK
29th and 30th October 2010, in Glasgow UK
You may wish to pass this on to any potentially interested parties.




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HOME TRUTHS ON CCSVI SCANNING AND TREATMENT IN THE UK

Download a PDF document that a member wrote, from a very personal perspective, regarding the lack of available CCSVI scanning and treatment in the UK.

These are the views of a pwMS and CCSVI, it is informative and may help people with convincing arguments for their doctors, however MS-CCSVI-UK is still committed to the persuance of research into CCSVI and its treatment, so that this can be made available on the NHS.




CCSVI Flyer
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MS-CCSVI-UK CCSVI information

Download an information sheet about CCSVI that you may refer to, for example, in discussions with your MP.



MS-CCSVI-UK 4 Scotland leaflet
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MS-CCSVI-UK 4 Scotland CCSVI information

Specifically for our members in Scotland. Download an information sheet about CCSVI that you may refer to, for example, in discussions with your MSP.



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MS-CCSVI-UK
CCSVI information

Download an information sheet about CCSVI that you may wish to refer to, for example, in discussions with your MP.



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MP Letter 2011-03



 Download a Word template to help you write to your MP
to encourage the pursuit of research, testing and treatment of CCSVI
in the UK.



WriteToThem

     Write To Them
A website to help you direct your letter to your MP



They Work for You

     They Work for You

TheyWorkForYou.com


Find out about the issues and debates in which your MP becomes involved. Register to receive alerts when your MP speaks in debates, or register to join discussions in the My Society chat room.



My Society

     My Society IRC Chat Channel

Register here for the Chat Channel



Media UK

     UK Media Contact Details

Link to a website containing contact details for all UK newspapers and broadcasters.


                                                                 This website does not purport to, nor intend to replace medical advice but to complement it by signposting to other possibilities in the understanding
                                                                                     of the symptoms labelled Multiple Sclerosis.  Individuals should always seek medical advice from their doctor.