Resources:–

a selection of statements that MS-CCSVI-UK are asking the MS Society to reconsider in their reporting of CCSVI:-

1. MS Society Press Release of 4th December 2009
   'Research Communications Officer at the MS Society, Dr Susan Kohlhaas, said:
   "Several medical advisers to the MS Society have read through the papers published by Dr Zamboni, and have heard him lecture on the subject.
   "They are not convinced by the evidence that blockages to draining veins from the brain are specific to people with MS, or that this explains the cause of MS at any stage of the condition."
   
   Prof A Compston's final statement is particularly dismissive: He said:
   "The treatment for CCSVI is not available for patients with multiple sclerosis in the United Kingdom because there is no convincing evidence to suggest that it is safe or beneficial to people with MS.
   "People with MS are unlikely to benefit from treatments that dilate blood vessels."
   
   

2. In his 'Open Letter' following an article in 'New Pathways', Simon Gillespie states:
   "There are also significant factual inaccuracies in New Pathways' coverage of CCSVI. For example, it is incorrect for the petition which your readers are urged to sign to state that "...no one in the control groups had the deformities [jugular vein abnormalities]". In fact, in the Buffalo study 25% of people who didn't have MS had a jugular vein abnormality (compared to 55% of people with MS who had such an abnormality)".
   
   At the time of the initiation of the petition (which MS-CCSVI-UK adopted at a later date) the Buffalo results had not been published, in fact the Buffalo studies had not even started.
   It should also be noted that the control group used in this study was even composed of blood relatives of people with MS who were being scanned.

3. In view of the opinions expressed on the MS Society website the overall impression is tending toward the negative rather than the proactive. Evidence of this perception is the response to the petition from the then Prime Minister Gordon Brown, which closely reflects the Society's statement of the 4th of December, in fact in some parts it was a word for word transcription.

4. Regarding the MS Society webpage Chronic Cerebro Spinal Venous Insufficiency:
   In the fourth paragraph: "Does it cause MS?" the question "whether CCSVI causes MS or MS causes CCSVI" has been partly answered, CCSVI, being a congenital syndrome, cannot be caused my MS, whether CCSVI causes MS is still to be ascertained.

5. In the MS Research Fact Sheet page of the MS Society website, there are fact sheets for a number of drugs, procedures, tests, therapies, vitamins but nothing on CCSVI. There is surely enough information now to write such a fact sheet for CCSVI.

MS-CCSVI-UK considers that it would be reasonable for the MS Society to update its views on CCSVI in order to encourage researchers to place bids for funding. The overall aim is to facilitate the process leading to research starting in this country.


Download the fact sheet from MS-CCSVI-UK that the MS Society found so objectionable that local branches were instructed to have nothing to do with our organisation.
By way of contrast download the Momentum Magazine Insert on CCSVI that is currently available from the American National Multiple Sclerosis Society.